Friday, 25 April 2014

Symptoms update! April 2014

I thought I would give an in depth list of my symptoms that I am suffering from at the moment.  I am listing everything I experience and I understand I may just be a little bit more aware of things going on in my body than before but I am listing in case anyone has anything similar. I have now been suffering with a headache and tinnitus for 18 months.  I do believe I possibly have pulsatile tinnitus but I can't say in truth that I absolutely do have it because Dr Dosumu has said I do not have it.  I have a pain clinic appointment next week and I have also received an appointment next month to go back to ENT at the local hospital.

Symptoms


  • I have a constant whirring noise from within my head on the left side (remember this was originally my woosh noise that sounded like a baby ultrasound that quietened down to a whirr) I find the whirr noise very strange it resembles to me like a turbulence sound or very similar to a distant motorbike sitting out in the street, maybe even an old fridge burring away in the background
  • As well as the whirring I have a constant low pitch electrical noise that I hear from the left side of my head(I refer to it as an old tv on standby)
  • I have a constant dull headache left sided above the ear and diagonally above the ear towards the back of the head, I can press the area where it is sore and a loud buzzing noise is heard
  • I have an ache & pressure feeling on the left temple area and this worsens when I bend forward, this is a newer symptom than the rest
  • I have a dull constant headache on top of the head but still on left side, at times when I can't stand the headache and pressure I put weight on the top of my head with both my hands and I can hear better as the electrical and buzzing sounds are not so loud and the pressure is much less, as soon as I release the weight on my head the electrical/buzzing noise gets louder and the pressure returns
  • I have pressure and a strange ache in my neck on my left side below the ear lobe, this is not sore to press or touch as it is deep within the neck, if I bend forward to pick anything up from the floor the pressure in my neck gets really bad and I get a loud heartbeat sound  (woosh woosh woosh)
  • I have pressure and a deep ache felt inside the left ear behind the ear drum, feels as if something is pushing from the inside out, the ear creaks and pops and at times I have to pop them myself to relieve the pressure feeling 
  • I developed pressure and a dull ache behind my left eye a few months after initial symptoms started, my eye creaks and squelches at times when touched, I noticed this originally when applying make-up. 
  • I see haze lines and blurring from left eye, it can be lines similar to sun rays, water blotches and at times a spiders web, it becomes worse when I walk any distance but I mainly notice it looking at a plain background like the sky or a road, or a plain wall
  • I occasionally have a pressure ache at the left side of the bridge of my nose at times specially when I'm walking and on an odd occasion a strange sensation over my cheek bone but only lasts for seconds 
  • I experience a roar sensation every morning when standing as soon as I get out of bed I can hear it very clearly, the sensation seems as if its deep in my neck going into my head, it stops after a few seconds and is very similar to the baby ultrasound noise I hear when I bend forward or possibly sounds like a distant bass drum 
  • When lying down in my bed at night it takes a while for my head to adjust and by this I mean my head hurts really bad on the left side but if I turn my head to lie on the right side the left side is just as sore it is as if my head doesn't like me to lie down and takes a while to adjust
  • When I open my eyes in the morning and I move my head the pain on the left side is at its worst then it adjusts to a duller ache after I am up and about after my roar sensation

    As you can see I have a fair amount of symptoms that I have tried my best to describe. Every doctor I have seen tries to separate the symptoms.  I was at the time still only 30 yrs old when the symptoms started but NO doctor seems concerned.  I have never listened to loud music nor have I ever used ear phones to listen to music so I know I haven't damaged my ears to cause tinnitus.  I did however paint my ceiling around a week before my symptoms started but three doctors told me to dismiss this as a coincidence and the ENT doctor last year said I had pulled a muscle due to the overhead painting. Other diagnosis's from doctors were ear infection, ear infection again, migraine, chronic headache, a virus, neuralgia, soft tissue damage, nerve damage, neuralgia again, nerve damage again, migraine again and more recently left side facial pain. MRI of head and neck was marked normal last year.

Please feel free to comment if you are suffering from similar.

Whirring Wanderer

1 comment:

  1. I have the same on the right side. I was diagnosed with fibromyalgia 2012.I've been given gabapentin for my head but it's also helped pain in my body. The feeling and noise are still there but the gabapentin has taken the weight off

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