June 2015 Update

I have nothing positive to update as yet.  I received my appointment through for the drug infusion for November 2015, it also states MRI scan & Review.  It looks like they are planning to do a scan whilst I am in hospital in November. I find it entirely unacceptable I have been begging for help since November 2012 and now I need to wait over three years for treatment.


On Wednesday 3rd June I received a letter from a hospital in Glasgow called New Victoria Hospital stating they could not contact me by telephone to arrange my MRA and could I telephone them within one week or my appointment for the scan would be cancelled.  I thought it strange as Dr Tyagi did say at my previous appointment that one of the three options was that he could arrange for all my scans to be repeated but he would see no need, I had chosen option one which was the drug infusion.  Now I was thinking Dr T was on my side and he had gone out his way to arrange another scan.  I telephoned the New Victoria Hospital over the following days and never got a response it was a constant answer phone, I left two voice mails with my telephone number, CHI number & date of birth.  To be honest I was totally confused as I did not have any missed calls on any of my telephones from the standard 0800 6783393 Nhs number.  I have given my telephone numbers to numerous medical staff who have asked for it over the last 2 and a half years so this baffled me.  On the third day after not receiving a response from New Victoria Hosp I emailed Dr Tyagi to let him know I had received such letter and that I was confused.  I also reminded him I had requested a copy of my CTA on three previous occasions and had yet to receive it.  His response was "I am confused as well because I received an email from the neuro-radiologists questioning why I was asking for an MRI scan when a CT angiogram had been normal (I have written to you in this regard). Let me make enquiries and I will revert to you"  


It gets more confusing, later that day the post arrived and I did indeed have a letter from Dr T stating that my request for MRA had been refused due to having a normal CTA.  I never requested an MRA in the first place and does Dr T actually know what he is doing, he is the only one who is able to request scans.  I still had no answer to what had gone wrong with the letters and his promised "let me make enquiries and revert to you" has never happened.  He never does what he states he will do.  Yesterday on the 22nd June I sent another email stating I wish to make a subject access request and this was now my 5th time requesting a copy of my CTA scan that was carried out on the 19th March and had been requested on five occasions since 8th April.  Dr T responded "I have requested for the CT angiogram images on a cd again this afternoon."  Now this is the first time he has ever acknowledged that he has requested my scan, in previous emails he said he would do it for me and then nothing or he would disregard it in the other emails and only answer part of my queries.  I also asked twice at my previous appointment with him on the 20th May if he could please get a copy of the CTA to me and he said he would.


I am getting closer to the end of a very long rope.  What do I have to do to get doctor's to listen to me. 


I HAVE A SOUND IN MY HEAD THAT SOUNDS LIKE A BABY'S ULTRASOUND, I HAVE A CONSTANT LEFT SIDED HEADACHE, I HAVE CONSTANT LEFT SIDE NECK AND EAR PRESSURE, I HAVE A BLUR IN MY LEFT EYE, I HAVE BALANCE ISSUES WHERE I GET PULLED TO THE LEFT SIDE, I AM EXHAUSTED BY LATE AFTERNOON, MY HEAD BECOMES EXTREMELY HEAVY, EVERYTHING I DO NEEDS TO BE DONE AT A SNAILS PACE.


Maybe I have severe psychological issues, maybe my mind is not as sound as I think it is, is my brain sending false signals, maybe I don't have a sound in my head, maybe I'm imagining it all?  And maybe Elvis Presley is still alive and maybe all doctors who are covering each others backsides need to take responsibility for their failings in treating me fairly!