Thursday 23 January 2014

The story so far! December 2013/January 2014

Symptoms are still present, I finished the 16 days of Nasodren and no change.  Let me take you back to last year to pick up the rest of my story taken from my diary where I had been to the GP in July 2013 and whereby they told me they would not investigate any more.  I decided to move to a new GP surgery where it would be smaller and have fewer doctors and I wanted to be treated as a brand new patient and for them to make a diagnosis of their own.  I joined in August 2013 and had my new patient visit with the nurse on the 23rd.  It took me a few weeks to pluck up the courage to visit the actual doctor as I felt I would be treated the same as before and not believed that my symptoms were real and need investigating.  It also gave me time to carry out more research on the internet about my symptoms. I now believed I had Pulsatile Tinnitus and arranged my first GP appointment on 24th September 2013 with Dr Dosumu.  Dr Do. listened to all my symptoms and decided I had neuralgia caused by nerve damage and that the tinnitus and other symptoms were non related.  She was reading from the computer screen and added that my previous doctor had noted I had Neuralgia.  I questioned this and explained that my woosh now whirr had started first, followed by headache the very next morning, I also asked about the pressure I had in my head, ear and neck because it was all one sided but this was dismissed and labelled as neuralgia. Dr Do. decided to explain what neuralgia was but I interrupted stating I was very well aware of what neuralgia was. I was starting to feel uptight at this point as everything I said was dismissed, I felt the more questions I asked the more rude and dismissive Dr Do. was being. I said I had come to the surgery as a new patient because my previous one did not seem to listen to me.  I continued to question the diagnosis on why Neuralgia would cause the sound in my head. I was then arrogantly told I did not have pulsatile tinnitus when I mentioned it. I had offered that I believed the noise I am hearing is pulsatile tinnitus by researching my symptoms recently. Dr Do. said that I had tinnitus but certainly did not have pulsatile tinnitus. Dr Do. decided the best course of action was to give a prescription for Gabapentin for the headache that I was to take for 3-4 weeks and then arrange a follow up appointment.  I said I would like referred to see someone about the headache because it was not normal for me and for the fact it had continued for so long, she said if nothing had changed at the follow up appointment I could be referred to a neurologist if I brought a name for referral.  I was slightly puzzled by this and asked you mean private? she said yes because everything serious had been ruled out by my previous doctor's surgery and as I'd had a previous MRI scan marked normal, they would see no reason to refer me.  She said I had been fully investigated and nothing was wrong with me. I came away feeling like I was being judged feeling like I'd made the whole thing up, so much so that I was now being refused investigations. 

This has followed me like a bad smell from the previous GP surgery where I was told they would no longer investigate my symptoms. I am unsure why every GP I have seen continues to separate all the symptoms that I am experiencing when most of them started at the same time.  I took the prescribed Gabapentin for 3 weeks and it did nothing apart from make the pain in my head feel 3D, I felt as if the pain was jumping out the side of my head and it made me feel very sleepy, spaced out and my eyes were stinging and bloodshot. I also felt really off balance more so than normal.  I stopped the prescription after 3 full weeks, I never made another GP appointment because I felt it would be a waste of time and I was sure Doctor's were labelling me as a hypochondriac and I'd be put in a straight jacket anytime soon.  The new doctor's (Dr Do) attitude was very defensive and to the point arrogant.  I could not put myself through meeting her again.  She did not treat me as a new patient and her diagnosis was not made of her own accord she read from the computer screen.

Before I knew it Christmas was nearly upon us.  A few days before Christmas I noticed I had a bit of a sore throat on the left side and I woke on Christmas morning to find I could hardly speak as my throat was so swollen and I started wheezing.  I got an emergency appointment at the GP surgery on 27th Dec 2013 I never did catch his name. I had a throat infection and was given a prescription for Penicillin for 7 days.  I think my body is run down as I normally don't take anything. Mr Wanderer was with me as I felt terribly off balance.  Mr Wanderer decided to tell this GP all about my on going symptoms since Oct 2012 and that nothing was being done, the GP decided to explain all about neuralgia and nerve damage, this was another doctor reading from the computer screen!!!  I had enough and asked to be referred to a private ENT Dr Marshall who I had found on the internet because of the on going sound I was hearing in my head and if I had no joy there I would then look at a private Neurologist as suggested by Dr Dosumu. The GP said the referral would be done and referred that day, he had all the details up on his screen.  As of yesterday the 22nd Jan 2014 the referral still had not been done as I found when I called the surgery.  Today 23rd Jan 2014 I seen Dr Stevenson so that he could write up the referral while I was there.  It transpires that the practice/surgery has two GP's Dr Stevenson & Dr Dosumu and at my previous appointment I had been unlucky to see the locum that simply forgot to do the referral I asked for.  I am glad I met Dr Stevenson as I preferred him over Dr Dosumu.  Dr St. apologised profusely and typed the referral while I was there sat with him and he then walked me through to the reception so I could see him giving it to the reception staff to send.  After explaining all my symptoms Dr St. believes I am suffering from migraines.  I just nodded and never expressed the feeling boiling in my belly, about to explode a wrath of expletive words.  I had already told Dr St. that no one was putting my symptoms together and every GP I had seen was trying to separate them.  I understand that I am new to the surgery but surely it doesn't take Einstein to realise I am suffering and have gone there to get answers and treatment.  I will await my appointment to see the private ENT doctor.


Whirring Wanderer